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This special post is actually a long overdue post, since i don’t know where to start, so here it goes….

This post will highlighted something special on my daughter, Sekar. She is such a  special baby…she was born with Symbrachydactyly .

According to this link, Babies with symbrachydactyly (sim-BRA-chi-DAK-til-ee) are born with short fingers, which may be webbed, or they are missing fingers. Usually this happens on only 1 hand, and the other hand looks typical.

Some of the finger bones (phalanges, fah-LAN-jeez) may be smaller than is typical, and the fingers may be stiff. In more serious cases, the fingers are missing bones. If the fingers have no bones at all, your baby may have little stumps of skin and soft tissue (nubbins) where the fingers would be.

Most babies with symbrachydactyly have a complete thumb, but sometimes the thumb is short or missing. The long bones that connect the fingers to the wrist (metacarpals) may be short, too. Some babies have a short forearm as well. The muscles, tendons and ligaments in the hand are also affected.

Symbrachydactyly in children

When a baby’s hands begin to form in the womb, they are shaped like mittens or paddles. Then the fingers divide. In babies with symbrachydactyly, the fingers (and sometimes the hand and arm) don’t fully form during this time. This may happen because the area doesn’t get enough blood flow or because of some other problem with the tissue. It’s not caused by anything the mother did or did not do while she was pregnant.

Most children with this condition can use their hands well enough to do all the usual things children do. Even if their smaller hand doesn’t work well on its own, they can use it to assist their other hand.

Symbrachydactyly isn’t common. It happens in about 1 in 32,000 babies. It’s not passed down in families (inherited). If you have a child with symbrachydactyly, you are not at any greater risk of having another child with the condition.

And this is Sekar’s left hand finger

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While on Sekar’s it wasn’t detected during pregnancy so it came as a shock for us when she was born.  But it all swept away when we see her peaceful and angelic face, we are so blessed beyond measures to have her,  she is Perfect!

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Alhamdulilah selain itu Sekar tumbuh sehat (bahkan sangat sehat), jago banget nyusu-nya and hopefully she will always stay healthy and happy! AMIN..because as a parent these what matters the most 🙂

For now, we just want to watch her grow and enjoying her developmental milestones. While searching  the latest medical technology on Symbrachydactyly is still on to do list 🙂 hopefully one day we are able to reconstructed our lovely daughter’s finger.

AMIN!!

Btw, this is 4 months old  Sekar WUEL9813

 

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woww…feels like a decade since my last post! HAHHAH LEBAY YOU MBAK!

ya iyalah gimana rasanya gak se-dekade coba…terakhir posting status single, eh pas balik balik nulis status udah emak beranak satu hihihihi. mari kita ucapkan ALHAMDULILAHH.

Alhamdulila berhasil dilamar, di nikahin secara sah dan dibuahi secara sah juga oleh si kekasih di tahun 2018 hahhaha. dan di tahun 2018 juga dikasih anugerah terindah yang diberikan Allah SWT, seorang bayi perempuan yang biasa dipanggil ‘Sekar’

she’s such a doll!!  IMG_7709

61 Dates You Can Take Your Beautiful Self On This Year

1. Search for all the coffee shops in your city or town. At least every two weeks, make a point to visit each of them for a breakfast treat.

2. Take yourself on an ultimate spa date. Get a mani, pedi, and even indulge in the foot massage.

3. Go on a run just before sunset and make sure to find a perfect spot to take a sunset selfie.

4. Gather your friends and go on a walk through one of the trails/paths in your town to just talk and catch up.

5. Order your favorite take-out food and have it shamelessly delivered to the house for a night of binge-Netflix and grub.

6. Play drink roulette at your favorite bar—a sort of eeny-meeny-miney-moe of sorts, and whatever drink you land on is the one you buy for yourself.

7. Go to your favorite restaurant, but instead of getting the same thing you always do, make it a point to order something new each time.

8. Make your own Iron Chef competition. Create a homemade food (ex: burgers, soup, salad—you name it!) and take Instagrams of your creations, as if they were restaurant quality.

9. Host a for-no-reason-at-all party at your house, complete with drinks, snacks, and music.

10. Grab your girls and go all out for a weekend night—dress to the nines, and hit up all your favorite clubs.

11. Get a picnic blanket, snacks, and something crafty (art supplies, journal, etc.) and bring the to the nearest forest preserve or park. Set up camp and enjoy the day (sun or shade) by relaxing, being creative, and enjoying some peace and quiet.

12. Buy cheap tickets to your favorite or local sports teams’ games and go with a bunch of friends or family members.

13. Spend the afternoon at the library, drinking coffee, journaling, and getting lost in a good book.

14. If it’s warm where you live, have a beach day—just you, your headphones, plenty of sunscreen, and of course, snacks. Too cold for all that? Convert your living room to the beach with some tropical music and drinks, and lay, yes down, swimsuit and all. A girl can pretend, right?! (Feel too weird to do that solo? Get your girlfriends and booze! Believe me, it’s silly but fun.)

15. Go to a park and swing on a swing. (When’s the last time you actually did that??)

16. Rollerblade around town.

17. Take yourself to that new pub you’ve been dying to try.

18. Join a 5K, mud run, or themed jog solo or with friends.

19. Go all out for one of your favorite sports teams’ games—dress in the team colors, make themed snacks and drinks, and have all your friends over to watch (and drink).

20. Grab a guyfriend and take him out on a friend-date to somewhere you’ve been wanting to explore.

21. Take yourself to the movies (and shamelessly sneak in some wine and Hershey’s kisses for snacks!)

22. Go to one of the pretty, touristy places in town and take pictures.

23. Gather some friends and go out for karaoke night. (Who cares if you’re the worst singer in the world?!)

24. Attend a reading at your local library.

25. Impulsively buy cheap tickets to a concert or show you’ve been thinking about, but haven’t bought because you haven’t had anyone to go with. Hang with yourself and take a don’t-you-wish-you-were-here-with-me solo selfie before the night ends!

26. Go to the bar alone and see who you meet. Dare yourself to talk to at least one person of the opposite sex.

27. Travel for the weekend to see an old friend, long-distance pal, or family member.

28. Go to a free cooking, sewing, scrapbooking, etc. class just for the hell of it. (Who knows what cool, DIY thinks you could learn!?)

29. Go solo shopping and treat yourself to at least one thing you don’t really need.

30. Spend the afternoon at a homeless shelter feeding and sharing stories with those in need.

31. Attend a Bible study or small group meeting with some people from your church.

32. Volunteer at a local animal clinic and help, play with, and love on some cute furry friends.

33. Go on a hike somewhere you haven’t been.

34. Wakeup and watch the sunrise from the top of a hill.

35. Call in sick to work one day and spend the afternoon playing hooky and window shopping downtown.

36. Spend a weekend day in a state park (or somewhere with beautiful nature) and turn off your phone. Indulge in a full 24 hours off the grid!

37. Build a snowman or bury yourself in the sand. (Seriously, when was the last time you did either of those things??)

38. Grab some friends and go dancing like fools at the local bar.

39. Skate at a nearby rink. (It’s more relaxing than you think, and if your rinks have disco balls and good music, well, you can let your inner child free!)

40. Go on a long, meditative nature walk.

41. Attend a local yoga, Zumba, or some type of workout class you haven’t had the motivation to go to yet.

42. Go sledding (if it’s cold) or roll down a hill (if it’s warm). Because sometimes you just have to take yourself on a fun, carefree, childhood playdate.

43. Ask a street musician to play your favorite song and dance with a stranger (or a dog, dogs are cute.)

44. Do something you’re absolutely terrified of completely on your own. (Ex: Touching stingrays, skydiving, going through a haunted house). If you survive, you can share the awesome story! (You totally will.)

45. Get drunk by yourself. (Why not?)

46. Make dinner to-go and find a pretty spot outside to eat.

47. Get dressed in something you’d never wear and go out. Let your crazy clothes give you a new identity for the night.

48. Build a fort in your bedroom/living room and spend the afternoon shamelessly watching your favorite TV shows.

49. Stay in and have an ultimate craft night—coloring, painting, drawing, etc.—feeling social? Invite some pals. And break open a bottle of wine (or two) if you’d like.

50. Go to the zoo. Spend the day petting animals, taking pictures, and just having fun on your own.

51. Take yourself on a workout date. (AKA get your lazy butt off the couch, get moving, and celebrate your body.) PS: Strong is the new sexy.

52. Go out in your favorite outfit; make a bet with yourself and ask at least one stranger to dance with you.

53. Buy dinner for yourself at a street vendor and find a park bench to just sit, eat, and people watch.

54. Indulge in an in-home spa day, complete with a bubble bath, scented candles, and wine.

55. Find a pretty hill, sit at the very top, and paint your toenails while watching the sunset.

56. Rent a fancy car and go on a weekend trip (with or without friends) somewhere new.

57. Spend a random night in the city and get a hotel. Order room service in a robe like a boss.

58. Take yourself out for a glass of champagne at a restaurant with a good view.

59. Rent a bike (or one of those awesome motor scooters and take a ride around town.)

60. Treat yourself to one of those paint-and-drink-wine nights (friends or solo.)

61. Go on a Ferris Wheel and take an epic selfie at the very top.

original piece : http://thoughtcatalog.com/marisa-donnelly/2016/12/the-ultimate-single-girl-bucket-list-61-dates-you-can-take-your-beautiful-self-on-this-year/

thank you 2016, you give me a new HELLO!

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and it’s all begun with the HELLO

 

 

and hello changed everything…..

So i won’t talk the turbulence that happened in 2016, i just want to reminiscing some of great talent in music-movie industry that we’ve lost in 2016.

January 2016

David Bowie

 

February 2016 

Maurice White (member of Earth Wind and Fire) 

Their ultimate legendary song, definitely is….

 

April 2016 

Prince 

*It may not his original song, but his interpretation of the song, is one of the best ever!*

 

December 2016 

Alan Thicke

Ok, he wasn’t a singer, but his son is. But who doesn’t know his character as “Jason Seaver” on Growing Pains. So to cherish his life to reminisc one of the best television series in the 90s, Growing Pains, let’s play this song.

 

George Michael 

*this song will always be my favorite from Georgie, aside of Club Tropicana by Wham!*

 

Carrie Fisher 

Irreplaceable actress who played Princess Leia Organa of Alderaan or should we say General Leia Organa. She returns to galaxy far, far away

 

Oh and we also Lost the Great Muhammad Ali this year

 

This picture sum up the notable people that we’ve lost 2016

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Gatau sih ini lebay aja atau gimana. Tapi ketika sitcom ‘friends’ abis masa tayangnya di tahun 2004, itu menandai selesainya sebuah era. Era anak anak tahun 90-an yang gede barengan sama serial Friends. Tapi ketika How I met Your Mother selesai masa tayangnya, yang juga tayang selama 9 tahun, selesai…gak dianggap sebagai endingnya sebuah era. Mungkin gak se-signifikan friends dan mungkin fans nya kepecah kebagi dua setelah ending HIMYM. Ada yang suka sama endingnya ada yang protes abis-abisan sama endingnya. hahhaha

Nah itu kan serial made in Hollywood semua. Kalau di Asia ada juga serial HALYU alias Korea production punya. Salah satu produksi Halyu yang luar biasa fenomenalnya adalah RUNNING MAN!!

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Tau kan???? TAUUUK KAN?????? hahhaha

Menurut gue ini adalah salah satu serial games paling setresss yang pernah dibuat. Setres buat yang nonton sama buat yang mainin apalagiii…yang mainin gamesnya yah mereka lagi-mereka lagi, lucunya, mereka gak trauma sama sekali dan gak pernah berniat mundur juga dari acara ini. Nah baru tahun iniii nih ada masalah, dari si Kang Garry cabut, menyusul Jong Kook sama Jih Yo (satu satuna pemain cewek di acara ini) yang cabut. dan akhirnya diputuskan februari 2017 jadi akhir dari perjalanan Running Man dari tahun 2010.

Running Man abis, juga menandai selesainya era Halyu part 1, plus mungkin barengan sama 2NE1 bubar juga kali yah…jadilah ini dianggep abisnya era 6 tahun kebersmaan dengan Running Man. Generasi haha hihi yang suka bertingkah konyol tapi penuh hiburan. Ok, pasti walau bloon tapi kocak ini, banyak kan yang terinspirasi dari Running Man??? ngakuuuuu!

Gue sih ngaku, banyak terinspirasi kalau bikin games kaya Running Man. hahhaha emang beneran seru games-nya dan team work nya emang jalan. gak kaku ala kakak kakak yang punya outbond lah hahhaha

Episode yang bakalan paling gue kenang itu adalah episode 100, ini epic banget sih…jamannya Olimpiade London dan mereka bergaya ala ala dewa Yunani…frak!! sama episode-episode awal sih….mereka masih kaku masih gobyosss lah

Sedih sih mereka udah mau selesai, mana gue juga sempet nonton mereka pas main di Jakarta. hahhahah. main bola paling gak jelas di seluruh dunia, mungkin keanehan mereka main bola cuma bisa dikalahin sama Nixau! nnanya lagi nih nixau siape??? hadeuhhh

Yah Running Man juga satu -satunya yang gue kejar waktu ke Korea, gue diajak ke Korea tanpa gue tau mau ngapain di Korea, dikasih map Halyu sama adek gue dan ngeliat semuanya ditandain sama spot spot Running Man pernah main disana. Jadilah gue datengin tuh spot spot Running Man, foto aja disana…gak jelas kan!! tapi yah gitu…itu tempat pernah dipake Running Man aja udah, se-simple itu hahhahah

Kurang lebih gitu deh tipikal anak anak yang suka nonton Running Man..hahhaha

Bakalan sedih sih Running Man gak ada lagi, karena kebodohan 7 orang ini gak ada yang bisa nandingin. Sama lah kaya gak bakalan ada yang bisa nandingin legend nya lawakan WARKOP DKI.

man…i’m gonna miss this show and i’m gonna miss laughing my ass off on the floor watching this clowny variety show. Oh and i’m gonna miss all of them

Kwang so, Haha, Jih Yo, Kang Garry, Jong Kook, Jae Suk, Ji Suk Jin

ini buat bacaan lanjutan aja, kali kali ada yang kangen juga sama mereka

https://www.soompi.com/2016/12/25/best-spartace-moments-running-man-2/

 

 

 

 

I never loved that city this much. Prior to what happened to me now, i’d rather hate that city because always left bad experiences while i was there. 

But this year, when we found each other, suddenly i always want to come back to your city and found you found me. I think i found my city love ❤️❤️❤️


Ola!

speak up!

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